Alliance syndrome de Dravet

Alliance syndrome de Dravet is a registered health nonprofit based in Léognan, Gironde, France. It is registered with the Repertoire National des Associations (RNA). It was founded in 2009 and has been operating for 17 years. Its registration number is W291004034. It has a GiveRadar Integrity Assessment of 52/100 (Partial transparency), indicating some public data is available but key signals are missing.

Alliance syndrome de Dravet has a GiveRadar Integrity Assessment of 52/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 52 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in France is 52/100.

Alliance syndrome de Dravet is located in Léognan, Gironde, France. The organization was established in 2009 and has been active for 17 years. Its registered address is 29 Bis CHEM1 de Lamarque, 33850, France.

Alliance syndrome de Dravet is classified as a Health organization, registered in France. It operates as a Déclaration simple.

Alliance syndrome de Dravet has a GiveRadar Integrity Assessment of 52/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Prefecture. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

to disseminate and develop information about Dravet's syndrome or called E.M.S.N. "Epilepsie Myoclonique Sévère du Nourrisson"; to offer support and assistance to families affected by this disease; to contribute to the progress of research to promote better care Alliance syndrome de Dravet is classified as a health organization registered in France. The organization was founded in 2009.

Among health charities registered in France: Alliance syndrome de Dravet's GiveRadar Integrity Assessment of 52/100 is in line with the peer average of 52/100.

Alliance syndrome de Dravet is a registered association in France. Donations to qualifying French nonprofits are eligible for a tax reduction of 66% of the donated amount, up to 20% of your taxable income. Donations to organizations providing aid to people in need qualify for a 75% reduction up to a set ceiling.

Alliance syndrome de Dravet is a French association under simple declaration (declaration simple) - the most common legal form for nonprofits in France, governed by the Loi du 1er juillet 1901. It is created by at least two persons and registered with the prefecture. It is registered in the Repertoire National des Associations (RNA), maintained by the French Ministry of the Interior, under RNA number W291004034.

You can verify Alliance syndrome de Dravet's legal status in several ways. First, look up the RNA record directly on the JOAFE (Journal Officiel des Associations et Fondations d'Entreprise) at https://www.journal-officiel.gouv.fr/pages/associations-search-associations using RNA number W291004034. The result shows the official name, registered purpose, registered address, and date of creation. Second, check the Data Associations portal maintained by the DJEPVA (Direction de la Jeunesse, de l'Education Populaire et de la Vie Associative) at https://www.data-asso.fr/ - this aggregates RNA data with financial information (comptes annuels), public subsidies received, and employment data. Third, ask the organisation for its statuts (bylaws), its most recent rapport d'activite (annual report), and its comptes annuels (annual accounts). Legitimate French charities, especially those receiving public subsidies or donations exceeding 153,000 EUR per year, are required to publish these. If the RNA record exists, the purpose matches, and financial reports are available, the organisation is legitimate.

You can donate to Alliance syndrome de Dravet directly through its donation page (https://www.dravet.fr/lalliance-syndrome-de-dravet/nos-actions-pour-soutenir-les-familles/). French charities typically accept bank transfers (virement bancaire via IBAN), cheques, online card payments, and recurring direct debits (prelevement automatique). Many use platforms like HelloAsso (France's leading free fundraising platform for associations), Hellodon, or their own website. For tax-deductible giving: donations to associations d'interet general and organismes d'utilite publique are eligible for a 66% income-tax reduction (reduction d'impot) up to 20% of taxable income, or 75% for organisations providing meals, shelter, or healthcare to the needy (up to 1,000 EUR per year, then 66% above that). The charity must issue a recu fiscal (tax receipt) for the donation to be deductible. Corporate donors (mecenat d'entreprise) can deduct 60% of donations up to 0.5% of turnover.

Alliance syndrome de Dravet is based in Léognan, Gironde. France is divided into 101 departements across 18 regions (13 in metropolitan France plus 5 overseas). French associations can operate nationally regardless of where they are registered - the RNA registration is done at the prefecture of the registered address but does not limit the geographic scope of activities.