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Association FibromyalgieSOS

Bussy-Saint-Georges, Seine-et-Marne Reg W553000183 · RNA/JOAFE Sign up to see website
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52
Integrity Assessment
Partial transparency
52/100 · methodology

About Association FibromyalgieSOS

to carry out actions with the government, political leaders and all other influential personalities, in order to alert them and inform them about the disease called fibromyalgia, in order to facilitate the rapid management of this condition at the medical level, when it is at the beginning, so that it does not worsen and become chronic and disabling and in order to save the maintenance of the employment and the balance of the patient and his family through the care provided; to work for the establishment of a national telephone number to assist the sick and the medical profession, this will have the effect of collecting information, transmitting them to medical research institutes and will allow in the future to …

mener des actions auprès du gouvernement, des dirigeants politiques et toutes autres personnalités influentes, afin de les alerter et de les informer sur la maladie appelée fibromyalgie et ce afin de faciliter la prise en charge rapide de cette affection au niveau médical, lorsqu'elle est au stade débutant, afin qu'elle ne s'aggrave et ne devienne chronique et invalidante et afin de sauver le maintien de l'emploi et l'équilibre du malade et de sa famille au travers des soins apportés ; oeuvrer pour que soit mis en place un numéro de téléphone national d'assistance aux malades et au corps médical, ceci aura pour effet de récolter des informations, les transmettre à des instituts de recherches médicales et permettra dans l'avenir de …

Translated from French by GiveRadar.

Founded
Headquarters
Bussy-Saint-Georges, Seine-et-Marne
Foundation type
Registered Association (Déclaration simple)

Focus areas & reach

· What they work on and where
❤️ Health
Cause tags

How it stacks up against peers

· vs. 8 similar health in France
Integrity Assessment This charity: 52
Peer average: 52

Red flags

· All clear
Préfecture deregistration
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

Association FibromyalgieSOS is a registered health nonprofit based in Bussy-Saint-Georges, Seine-et-Marne, France. It is registered with the Repertoire National des Associations (RNA). It was founded in 2005 and has been operating for 21 years. Its registration number is W553000183. It has a GiveRadar Integrity Assessment of 52/100 (Partial transparency), indicating some public data is available but key signals are missing.

Association FibromyalgieSOS has a GiveRadar Integrity Assessment of 52/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 52 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in France is 52/100.

Association FibromyalgieSOS is located in Bussy-Saint-Georges, Seine-et-Marne, France. The organization was established in 2005 and has been active for 21 years. Its registered address is 54 RUE DE FERRIERES, 77600, France.

Association FibromyalgieSOS is classified as a Health organization, registered in France. It operates as a Déclaration simple.

Association FibromyalgieSOS has a GiveRadar Integrity Assessment of 52/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Prefecture. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

to carry out actions with the government, political leaders and all other influential personalities, in order to alert them and inform them about the disease called fibromyalgia, in order to facilitate the rapid management of this condition at the medical level, when it is at the beginning, so that it does not worsen and become chronic and disabling and in order to save the maintenance of the employment and the balance of the patient and his family through the care provided; to work for the establishment of a national telephone number to assist the sick and the medical profession, this will have the effect of collecting information, transmitting them to... Association FibromyalgieSOS is classified as a health organization registered in France. The organization was founded in 2005.

Among health charities registered in France: Association FibromyalgieSOS's GiveRadar Integrity Assessment of 52/100 is in line with the peer average of 52/100.

Association FibromyalgieSOS is a registered association in France. Donations to qualifying French nonprofits are eligible for a tax reduction of 66% of the donated amount, up to 20% of your taxable income. Donations to organizations providing aid to people in need qualify for a 75% reduction up to a set ceiling.

Association FibromyalgieSOS is a French association under simple declaration (declaration simple) - the most common legal form for nonprofits in France, governed by the Loi du 1er juillet 1901. It is created by at least two persons and registered with the prefecture. It is registered in the Repertoire National des Associations (RNA), maintained by the French Ministry of the Interior, under RNA number W553000183.

You can verify Association FibromyalgieSOS's legal status in several ways. First, look up the RNA record directly on the JOAFE (Journal Officiel des Associations et Fondations d'Entreprise) at https://www.journal-officiel.gouv.fr/pages/associations-search-associations using RNA number W553000183. The result shows the official name, registered purpose, registered address, and date of creation. Second, check the Data Associations portal maintained by the DJEPVA (Direction de la Jeunesse, de l'Education Populaire et de la Vie Associative) at https://www.data-asso.fr/ - this aggregates RNA data with financial information (comptes annuels), public subsidies received, and employment data. Third, ask the organisation for its statuts (bylaws), its most recent rapport d'activite (annual report), and its comptes annuels (annual accounts). Legitimate French charities, especially those receiving public subsidies or donations exceeding 153,000 EUR per year, are required to publish these. If the RNA record exists, the purpose matches, and financial reports are available, the organisation is legitimate.

You can donate to Association FibromyalgieSOS directly through its donation page (https://fibromyalgiesos.fr/soutenez-nous/faire-un-don/). French charities typically accept bank transfers (virement bancaire via IBAN), cheques, online card payments, and recurring direct debits (prelevement automatique). Many use platforms like HelloAsso (France's leading free fundraising platform for associations), Hellodon, or their own website. For tax-deductible giving: donations to associations d'interet general and organismes d'utilite publique are eligible for a 66% income-tax reduction (reduction d'impot) up to 20% of taxable income, or 75% for organisations providing meals, shelter, or healthcare to the needy (up to 1,000 EUR per year, then 66% above that). The charity must issue a recu fiscal (tax receipt) for the donation to be deductible. Corporate donors (mecenat d'entreprise) can deduct 60% of donations up to 0.5% of turnover.

Association FibromyalgieSOS is based in Bussy-Saint-Georges, Seine-et-Marne. France is divided into 101 departements across 18 regions (13 in metropolitan France plus 5 overseas). French associations can operate nationally regardless of where they are registered - the RNA registration is done at the prefecture of the registered address but does not limit the geographic scope of activities.

Verified against 2 official sources, last refreshed .

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Taxes

Tax-deductibility for donors

French donations to associations d'intérêt général or associations reconnues d'utilité publique are deductible (66% crédit d'impôt for individuals up to a cap).

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Still gathering leadership data

We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.

Latest news

From global news sources

10 articles found

From global news sources

Sentiment

Neutral

Activity timeline

Filings and press mentions, merged

Saint-Georges-de-Reintembault. En bleu devant la mairie pour la fibromyalgie - lamanchelibre.fr
May 2026
www.lamanchelibre.fr
Journée Mondiale de la fibromyalgie, le 12 mai - Journée Mondiale
May 2026
www.journee-mondiale.com
Fibromyalgie : « Le certificat médical, c’est la clé de la reconnaissance du handicap. » - Faire Face - Mieux vivre le h
Feb 2024
www.faire-face.fr
Fibromyalgie - Cité des Sciences
Oct 2023
www.cite-sciences.fr
CBD : Effets bénéfiques ou effet de mode ? - France Assos Santé
Jul 2021
france-assos-sante.org
Fibromyalgie, ô ma douleur - Marie Claire
Jul 2018
www.marieclaire.fr
Fibromyalgie : des patients soulagés par les nouvelles cures thermales - ladepeche.fr
Oct 2016
www.ladepeche.fr
Fibromyalgie, un mal enfin reconnu ? - L'Humanité
Oct 2016
www.humanite.fr
Le Roller du Touch roule pour la fibromyalgie - ladepeche.fr
Mar 2015
www.ladepeche.fr
Fibromyalgie : "on a mal partout, mal tout le temps" - Le Populaire du Centre
May 2013
www.lepopulaire.fr

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Sources and verification

Refreshed

Registration and legal identity
Journal Officiel des Associations (JOAFE)
News and media coverage
GDELT Project + Google News

Data freshness

Last updated
Apr 21, 2026
Profile completeness
45%

What we don't know

Honest gaps - our score reflects transparency, not impact

Financial filings
No Comptes annuels (Journal Officiel) on file
Executive compensation
Top-officer pay not disclosed
Named leadership
Board and officer list not yet indexed
Mission statement
No self-published statement of purpose
Programs & projects
No named programs listed by the charity
Tax-deductibility status
Whether donations are tax-deductible has not been verified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Association FibromyalgieSOS

What is Association FibromyalgieSOS?
Association FibromyalgieSOS is a health registered association based in Bussy-Saint-Georges, France. to carry out actions with the government, political leaders and all other influential personalities, in order to alert them and inform them about the disease called fibromyalgia, in order to facilitate the rapid management of this condition at the medical level, when it is at the beginning, so that it does not worsen and become chronic and disabling and in order to save the maintenance of the employment and the balance of the patient and his family through the care provided; to work for the establishment of a national telephone number to assist the sick and the medical profession, this will have the effect of collecting information, transmitting them to medical research institutes and will allow in the future to find ways of detecting the disease; to modify the texts of laws relating to these diseases with the bodies concerned, in order to obtain a better care of the sick; to raise awareness of the medical profession, practitioners, researchers, public institutions concerned by the health problems related to this disease, as well as the general public so that the fibromyalgia is no longer unknown; to inform the population, the media, the medical bodies and other bodies in order to organize their bodies, to organize their bodies, to organize their bodies, to organize their bodies, to organize their bodies, to organize their bodies, to carry out the contacts, to carry out all the links of chronic suffering, and to strengthen the public institutions concerned with the problems, to strengthen the problems, to ensure that the necessary to ensure that they are not to ensure that they are not to ensure that they are not to ensure that they are not the correct, that the correct, that they are not to ensure that they are not the correct, that they are not the correct, that they are not to ensure that they are not to the correct, that they are not to the correct, that they are not to ensure that they are not to the correct, that they are not to ensure that they are not to the correct, that they are not to ensure that they are not to the correct, that they are not to the correct, that they are not to the correct, that they are not to the correct, that they are not to ensure that they are not to the correct, that they are not to the correct, that they are not to the correct, that they are not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to do not to
When was Association FibromyalgieSOS founded?
Association FibromyalgieSOS was founded in 2005.
Where is Association FibromyalgieSOS located?
Headquartered in Bussy-Saint-Georges, France.
Is Association FibromyalgieSOS trustworthy?
Association FibromyalgieSOS has a GiveRadar Integrity Assessment of 52 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Association FibromyalgieSOS's registration number?
Registration: W553000183 (France).
What is Association FibromyalgieSOS's website?
http://www.fibromyalgiesos.fr
Are donations to Association FibromyalgieSOS tax-deductible?
Donations may be tax-deductible for residents of France under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.