Charities United States Sports & Recreation Huntingtons Disease Society of America Inc
Huntingtons Disease Society of America Inc logo

Huntingtons Disease Society of America Inc

Dedicated to improving the lives of people with huntington's disease and their families.

Huntington's Disease Society

New York, NY EIN 133349872 · IRS Reg 13-3349872 · IRS Sign up to see website
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79
Integrity Assessment
Strong transparency
79/100 · methodology

About Huntingtons Disease Society of America Inc

Huntingtons Disease Society of America Inc is a sports organization based in NEW YORK, United States. Annual revenue: $10.7 million. EIN: 133349872.

Founded
Headquarters
New York, NY
Foundation type
Publicly-supported charity (509(a)(2))
IRS subsection
501(c)(c3)
Ruling date
Size
large

Verified certifications

Confirmed against the issuing authority - not self-reported.

IRS Tax-Deductible since 1988

Mission

Dedicated to improving the lives of people with huntington's disease and their families.

Focus areas & reach

· What they work on and where
Sports & Recreation
Cause tags

How it stacks up against peers

· vs. 8 similar sports & recreation in United States
Program spending This charity: 0%
Peer average: 94%
CEO comp as % of revenue This charity: 3.30%
Peer average: 0.48%
Integrity Assessment This charity: 79
Peer average: 92

Red flags

· All clear
IRS revocation history
OFAC / EU / UN sanctions
Open investigations
Governance scandals
Related-party deals
Excessive exec comp

Common questions

· Auto-generated from filings + methodology

Huntingtons Disease Society of America Inc is a registered sports & recreation nonprofit based in New York, NY, United States. It is registered with the Internal Revenue Service (IRS). It was founded in 1986 and has been operating for 40 years. Its EIN is 133349872. It has a GiveRadar Integrity Assessment of 79/100 (Strong transparency), indicating well-documented governance, financials, and contact details. This is below the average of 92/100 for sports & recreation charities in United States. The organization reports $10M in annual revenue. 106 officers and directors are publicly disclosed. No red flags have been detected.

Huntingtons Disease Society of America Inc has a GiveRadar Integrity Assessment of 79/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 79 ('Strong transparency') reflects well-documented governance, recent financials, named leadership, and working contact details. For comparison, the average integrity assessment for sports & recreation charities in United States is 92/100.

Huntingtons Disease Society of America Inc is located in New York, NY, United States. The organization was established in 1986 and has been active for 40 years.

Based on official tax filings, Huntingtons Disease Society of America Inc has $10M in annual revenue. Its revenue is significantly above the peer average of $725K. Create a free GiveRadar account to view the complete financial breakdown with year-over-year trends.

Huntingtons Disease Society of America Inc is classified as a Sports & Recreation organization, registered in United States. It operates as a Publicly-supported charity (509(a)(2)). By size, it is categorized as a large organization. It has $10M in annual revenue. The organization has 106 disclosed officers and directors.

No red flags have been detected for Huntingtons Disease Society of America Inc. GiveRadar automatically screens charities for concerning patterns including high executive compensation, low program spending, and missing financial filings. Based on available official data, no issues have been identified.

Huntingtons Disease Society of America Inc has a GiveRadar Integrity Assessment of 79/100 (Strong transparency) and no red flags have been detected, which suggests it is a well-documented organization. It is regulated by the IRS. You can donate directly through their official donation page linked on their GiveRadar profile. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.

Huntingtons Disease Society of America Inc is a sports organization based in NEW YORK, United States. Annual revenue: $10.7 million. EIN: 133349872. Huntingtons Disease Society of America Inc is classified as a sports & recreation organization registered in United States. The organization was founded in 1986.

Among sports & recreation charities registered in United States: Huntingtons Disease Society of America Inc's GiveRadar Integrity Assessment of 79/100 is below the peer average of 92/100. Its annual revenue of $10M is well above the peer average of $725K.

Yes, donations to Huntingtons Disease Society of America Inc are generally tax-deductible in the United States. Its EIN is 133349872, which you can use for tax filing purposes. Donors can typically deduct contributions on their federal income tax return if they itemize deductions. Consult a tax professional for guidance specific to your situation.

Verified against 4 official sources, last refreshed .

Annual revenue
$10M-$100M
0% to programs
Source: IRS 990 (FY2024) why this matters
Unlock exact figures

Filing history

5 years on file from IRS 990 (FY2024): revenue, expenses, program spending, assets, and liabilities by fiscal year.

Years on record: FY2024, FY2023, FY2022, FY2021, FY2020.
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Taxes

Tax-deductibility for donors

Donations may be tax-deductible for residents of United States under local rules. Confirm with the charity directly.

Always confirm tax treatment with the charity directly or your tax advisor before donating.

Leadership

AM
Amy Gray
President And CEO

Officers & trustees (25)

Source: Public filings

AM
Amy G•••
President And CEO
AN
Angela A••••
TRUSTEE
AR
Arik J••••••
CHIEF MISSION OFFICER
BE
Beth H••••••
TRUSTEE
CH
Christopher C••••••••
Director
DA
Daniel B••••••
TRUSTEE
DE
Deborah B•••
REGIONAL DEVELOPMENT DIRECTOR
DE
Debra L••••••
DIR. OF EDUCATION PROG THRU MAY 2023
DO
Dominique T•••••
TRUSTEE
EJ
Ej G•••••
PAST CHAIR
ER
Erin F•••••••••••• M•
TRUSTEE
GE
George Y•••••••
CHIEF MISSION & SCI. AFFAIRS
JA
Jamison S••••
Director & NATIONAL DEVELOPMENT
JA
Jay H•••••
TRUSTEE
JE
Jeff C••••••
TRUSTEE
JE
Jeffrey B••••
TRUSTEE
JE
Jenne C•••••••••
SECRETARY
JO
Jonathan K•••• E••
TRUSTEE
KA
Kamran A•••
TREASURER
KE
Kelsey P•••••
TRUSTEE
LE
Leslie M T••••••• P••
TRUSTEE
LO
Louise V•••••
CHIEF EXECUTIVE OFFICER
MA
Mark C••
TRUSTEE
RE
Rebecca C•••
CONTROLLER
RO
Rosemary C•••••••
CHIEF OPERATIONS OFFICER
Full names, contact details & compensation

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Latest news

From global news sources

No recent news coverage found

News coverage will appear here when articles mention this organization.

Activity timeline

Filings and press mentions, merged

Form filed
$10.2M revenue
FY2024
IRS_990
Form filed
$9.8M revenue
FY2023
IRS_990
Form filed
$10.7M revenue
FY2022
IRS_990
Form filed
$12.2M revenue
FY2021
IRS_990
Form filed
$8.6M revenue
FY2020
IRS_990

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Peer charities

Other sports & recreation in United States, by integrity assessment

Charity Score Revenue Program %
Huntingtons Disease Society of America Inc This page 79 $10.2 million -
USA Swimming Inc 93 $1.1 million 87%
National Junior Basketball 93 $366,628 100%
Fishers Area Swimming Tigers Inc 93 $847,192 96%
Adaptive Sports Center of Crested Butte Inc 93 $5.2 million 83%
Junior Golf Association of Broward County Inc 93 $71,467 100%
National Junior Basketball 90 $128,259 100%
Arvada Hockey Association 90 $1.2 million 99%
Mansfield Girls Softball Association 90 $130,251 90%

Sources and verification

Refreshed

Registration and legal identity
Internal Revenue Service (IRS) - Tax Exempt Organization Search
Financial filings
IRS Form 990 filings - Fiscal year 2024 most recent on file.
Officers and trustees
Internal Revenue Service (IRS) - Tax Exempt Organization Search - 106 disclosed in the public registry.
Supplementary verification
Charity Navigator

Data freshness

Last updated
May 27, 2026
Profile completeness
90%

What we don't know

Honest gaps - our score reflects transparency, not impact

Programs & projects
No named programs listed by the charity
Operating reach
Countries where programs run not specified

Methodology

GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.

Read full methodology

Quick facts about Huntingtons Disease Society of America Inc

What is Huntingtons Disease Society of America Inc?
Huntingtons Disease Society of America Inc is a sports & recreation publicly-supported charity (509(a)(2)) based in New York, United States. Huntingtons Disease Society of America Inc is a sports organization based in NEW YORK, United States. Annual revenue: $10.7 million. EIN: 133349872.
When was Huntingtons Disease Society of America Inc founded?
Huntingtons Disease Society of America Inc was founded in 1986.
Who leads Huntingtons Disease Society of America Inc?
Amy Gray serves as President And CEO.
Where is Huntingtons Disease Society of America Inc located?
Headquartered in New York, United States.
What is Huntingtons Disease Society of America Inc's annual budget?
Annual revenue for fiscal year 2024 is approximately $10M-$100M. 0% of expenses go to program services.
Is Huntingtons Disease Society of America Inc trustworthy?
Huntingtons Disease Society of America Inc has a GiveRadar Integrity Assessment of 79 out of 100 (Strong transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
What is Huntingtons Disease Society of America Inc's registration number?
IRS EIN: 133349872. Registration: 13-3349872 (United States).
What is Huntingtons Disease Society of America Inc's website?
http://www.hdsa.org