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Visit www.rarediseases.co.zaAbout Rare Disease Society of South Africa
Rare Diseases South Africa bridges the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.
Focus areas & reach
· What they work on and whereHow it stacks up against peers
· vs. 8 similar health in South AfricaRed flags
· All clearCommon questions
· Auto-generated from filings + methodologyRare Disease Society of South Africa is a registered health nonprofit based in Sandton, Gauteng, South Africa. It is registered with the Department of Social Development NPO Directorate. It was founded in 2013 and has been operating for 13 years. Its registration number is 120-991 NPO. It has a GiveRadar Integrity Assessment of 52/100 (Partial transparency), indicating some public data is available but key signals are missing.
Rare Disease Society of South Africa has a GiveRadar Integrity Assessment of 52/100. This score combines five components: Registration (20 pts), Financial Transparency (30 pts), Governance (20 pts), Contact Availability (10 pts), and Data Recency (20 pts), with negative adjustments for any red flags. A score of 52 ('Partial transparency') means some public data is on file but key signals are missing - worth a closer look before donating. For comparison, the average integrity assessment for health charities in South Africa is 52/100.
Rare Disease Society of South Africa is located in Sandton, Gauteng, South Africa. The organization was established in 2013 and has been active for 13 years.
Rare Disease Society of South Africa is classified as a Health organization, registered in South Africa. It operates as a Voluntary Association.
Rare Disease Society of South Africa has a GiveRadar Integrity Assessment of 52/100. We recommend reviewing the full profile before making a donation decision. The organization is overseen by the Department of Social Development (DSD). Visit the Rare Disease Society of South Africa profile on GiveRadar for full details before deciding. GiveRadar provides data for research purposes and does not endorse any organization. Always do your own due diligence.
Rare Diseases South Africa bridges the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment. Rare Disease Society of South Africa is classified as a health organization registered in South Africa. The organization was founded in 2013.
Among health charities registered in South Africa: Rare Disease Society of South Africa's GiveRadar Integrity Assessment of 52/100 is in line with the peer average of 52/100.
Rare Disease Society of South Africa is registered with the South African Department of Social Development as a Non-Profit Organisation (NPO). If the organisation also holds Public Benefit Organisation (PBO) status from the South African Revenue Service (SARS), donations may be tax-deductible. Organisations with Section 18A approval can issue tax-deductible donation receipts, allowing donors to deduct contributions up to 10% of their taxable income. Verify PBO and Section 18A status directly with SARS before claiming a deduction.
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Tax-deductibility for donors
Donations may be tax-deductible for residents of South Africa under local rules. Confirm with the charity directly.
Rare Disease Society of South Africa is registered in South Africa. Donations from the Netherlands to charities outside the EU/EEA are generally not tax-deductible for Dutch donors unless the charity is listed on the Dutch ANBI register with foreign-recognized status.
Rare Disease Society of South Africa is registered in South Africa. US donors generally cannot deduct gifts to non-US charities directly. To claim a deduction, route the gift through a US 'Friends of' fiscal sponsor or a donor-advised fund that performs equivalency determination (IRS Rev. Proc. 92-94).
Always confirm tax treatment with the charity directly or your tax advisor before donating.
We check government filings and charity disclosures quarterly. If you represent this charity, claim this page to add officers directly.
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Other health in South Africa, by integrity assessment
Sources and verification
Refreshed
- Registration and legal identity
- South African Department of Social Development (NPO Directorate)
Data freshness
What we don't know
Honest gaps - our score reflects transparency, not impact
Methodology
GiveRadar combines public registry filings, ProPublica Nonprofit Explorer, Charity Navigator, GuideStar, and news archives into a single 0-100 integrity assessment. We don't take a cut of any donation, ever.
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Quick facts about Rare Disease Society of South Africa
- What is Rare Disease Society of South Africa?
- Rare Disease Society of South Africa is a health voluntary association based in Sandton, South Africa. Rare Diseases South Africa bridges the gap to improved quality of life for those impacted by Rare Diseases and congenital disorders through advocacy and empowerment.
- When was Rare Disease Society of South Africa founded?
- Rare Disease Society of South Africa was founded in 2013.
- Where is Rare Disease Society of South Africa located?
- Headquartered in Sandton, South Africa.
- Is Rare Disease Society of South Africa trustworthy?
- Rare Disease Society of South Africa has a GiveRadar Integrity Assessment of 52 out of 100 (Partial transparency). The score reflects public-data transparency: registration, financial disclosure, governance, contact details, and how recently data was refreshed. It does not measure program impact.
- What is Rare Disease Society of South Africa's registration number?
- Registration: 120-991 NPO (South Africa).
- What is Rare Disease Society of South Africa's website?
- https://www.rarediseases.co.za/
- Are donations to Rare Disease Society of South Africa tax-deductible?
- Donations may be tax-deductible for residents of South Africa under local rules. US donors should check whether the charity has an equivalency-determination letter or a US-based fiscal sponsor before claiming a deduction.